The Vision Voice newsletter comes out three times a year. It’s our newsletter to keep you up to date with what we’re doing on behalf of the macular disease community. You’ll also find the latest research news, upcoming events, and inspiring stories from our community. This is the audio version of the newsletter.
The new My Eyes service offering is the first macular disease patient support service aimed at enhancing health outcomes by providing education, resources, and emotional support, leading to better adherence to treatment plans, improved self-management, and increased overall well-being. If you have a macular disease diagnosis, please consider connecting with the My Eyes service. Like all our support services, My Eyes is free of charge and available to you no matter where you live.
A big thank you to the 2,000 people living with macular disease who participated in our second Social Impact survey. An amazing response.
The surveys help us identify new ways we can support you, and help inform our advocacy activities, and research priorities.
Our second survey focussed on areas including mental health, barriers to persisting with anti-VEGF injections, concerns about falling, and areas of advocacy you would like MDFA to focus on. You can read about the key findings from the survey and how this data informs the work we do to support the macular disease community.
