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    Key advocacy and research reports

    At MDFA, we conducts our own research to expand our understanding of macular disease.

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    Macular Disease Foundation Australia contributes to research to support the knowledge base on macular disease. This then translates into better patient outcomes.

    The following reports have been authored by MDFA, or involved input from MDFA.

    Advocacy

    • Saving sight saves money: addressing treatment access and affordability in macular disease

      Published: 2024
      Author: Macular Disease Foundation Australia

      Macular Disease Foundation Australia’s latest report highlights the issues facing people with neovascular age-related macular disease, and other macular conditions, when it comes to accessing, affording and persisting with sight-saving treatment. The report looks at what the future holds and provides recommendations for what the Government can do to address these important issues.

      See the report

    • The Journey to See: A Model for Success

      Published: 2018
      Authors: Macular Disease Foundation Australia

      The Journey to See: A Model for Success, published in 2018, is a report on Australia’s world-leading outcomes for the treatment of age-related macular degeneration.

      See the report

    • The economic impact of diabetic macular oedema in Australia

      Published: 2015

      Authors: Bayer Australia, in partnership with Deloitte Access Economics, with input from Macular Disease Foundation Australia

      Diabetes and its complications, including diabetic macular oedema (DMO) is one of today’s biggest public health challenges. This report shows the workforce will be hard hit by DMO due productivity losses from lower participation, absenteeism and premature death.

      Read the report

    • Global Ageing & Vision Advocacy Summit Report

      Published: 2013

      Summit hosted by: Macular Disease Foundation Australia and the International Federation on Ageing.

      Macular Disease Foundation Australia and other leading advocates presented their work on ageing and vision, exploring linkages and commonalities. The summit provided a platform, through the exchange of learning and knowledge, to build the capability and capacity of the ageing and vision sectors to effectively advocate and represent the interests of citizens at risk of vision impairment.

      See the report

    • Advocating for Improved Treatment and Outcomes for Wet Age-Related Macular Degeneration

      Published: 2012
      Author: The Angiogenesis Foundation, supported by Macular Disease Foundation Australia

      The US Angiogenesis Foundation’s white paper “Advocating for Improved Treatment and Outcomes for Wet Age-Related Macular Degeneration” was the result of the Australian Wet Age-Related Macular Degeneration Coalition Expert Summit in July 2012. The summit was convened by the Angiogenesis Foundation and Macular Disease Foundation Australia, marking a significant step forward in the fight against this eye disease.

      See the white paper

    • Eyes on the future: A Clear Outlook on AMD

      Published: 2011
      Authors: Macular Disease Foundation Australia, in partnership with Deloitte Access Economics

      Eyes on the Future – A Clear Outlook on Age-Related Macular Degeneration details the diagnosis, epidemiology, risk and protective factors, costs, treatment, treatment barriers and low vision rehabilitation of macular degeneration and makes numerous recommendations to improve outcomes for patients.

      See the report

    Aged care

    Assistive technology

    • Low vision, quality of life and independence: Aids and technologies review

      Published: 2016
      Author: Macular Disease Foundation Australia

      The report highlights the evidence base supporting the benefits of aids and technologies for those with vision loss and blindness and discusses the major barriers to accessing low vision aids in Australia.

      Read the report

    Patient and carer perspectives

    • Implementing a multi-modal support service model for the family caregivers of persons with age-related macular degeneration: a study protocol for a randomised controlled trial

      Published: 2017
      Authors: Bamini Gopinath, Ashley Craig, Annette Kifley, Gerald Liew, Jaye Bloffwitch, Kim Van Vu, Nichole Joachim, Rob Cummins, Julie Heraghty, Timothy Broady, Alison Hayes, Paul Mitchell

      This study aims to implement and evaluate an innovative, multi-modal support service programme that aims to empower family caregivers by improving their coping strategies, enhancing hopeful feelings such as self-efficacy and helping them make the most of available sources of social and financial support.

      Read the full journal article

    • The emotional and physical impact of wet age-related macular degeneration: findings from the wAMD Patient and Caregiver Survey

      Published: 2016
      Authors: Monica Varano, Nicole Eter, Steve Winyard, Kim U Wittrup-Jensen, Rafael Navarro, and Julie Heraghty, On behalf of the wAMD Patient and Caregiver Survey Committee members

      This was a cross-sectional survey to evaluate the physical and emotional impact of wet age-related macular degeneration (wAMD) on a global cohort of patients who were receiving (or had previously received) antivascular endothelial growth factor injections, and caregivers (paid and unpaid).

      Read the full journal article

    • Caregiver perceptions about the impact of caring for patients with wet age-related macular degeneration

      Published: 2015

      Authors: Marija Vukicevic, Julie Heraghty, Rob Cummins, Bamini Gopinath, and Paul Mitchell

      The aim of this study was to explore the perceptions of caregivers of persons with neovascular AMD in relation to the most important aspects of caring, as described in extended answers to self-administered survey questions.

      Read the full journal article

    • Current barriers to treatment for wet age-related macular degeneration (wAMD): findings from the wAMD patient and caregiver survey

      Published: 2015

      Authors: Monica Varano, Nicole Eter, Steve Winyard, Kim U Wittrup-Jensen, Rafael Navarro, and Julie Heraghty, On behalf of the wAMD Patient and Caregiver Survey Committee members

      A cross-sectional survey to evaluate the current management of wet age-related macular degeneration (wAMD) and to identify barriers to treatment from a patient and caregiver perspective.

      Read the full journal article

    National Action Plan

    • A better view: National Strategic Action Plan for Macular Disease

      Published: 2019
      Author: Australian Government Department of Health, in partnership with Macular Disease Foundation Australia

      Development of the National Strategic Action Plan for Macular Disease was led by Macular Disease Foundation Australia with funding from the Australian Government Department of Health.

      The National Action Plan aims to outline Australia’s national response to macular disease and inform how limited health care resources can be better coordinated and targeted across all levels of government.

      The National Action Plan is supported by supplementary documents showing the evidence of need, stocktake report and consultation report.

      See the National Action Plan

    Research

    • Research Impact Report

      Published: 2024
      Author: Macular Disease Foundation Australia

      Introducing our new MDFA Research Impact Report – an inspiring showcase of the groundbreaking projects we have invested in to help reduce the impact of macular disease. This investment is only made possible through the generous donations and bequests of our community.

      Read the report

    • 10 Years of Research

      Published: 2021
      Author: Macular Disease Foundation Australia

      This 28-page report profiles each of these talented researchers, outlining why MDFA funded their project and how they have contributed to the macular disease knowledge bank both here in Australia and around the world.

      Read the report

    The latest research news

     

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