Wellbeing

Living well with macular disease

Learning you are at risk of macular disease – or being diagnosed with a macular condition – can be challenging.

You may feel many emotions ranging from disbelief, apprehension and even depression. Try not to let your emotions get the better of you.

Take a deep breath, pause, and take time to calmly sort out the pathway that will lead to the best outcomes.

A diagnosis of macular disease will not necessarily mean you will lose your vision.

Some macular conditions can be treated. You may also be able to make diet and lifestyle changes to slow progression of the disease.

If you do experience vision loss, it’s possible to live happily and remain independent.

If you feel withdrawn, anxious or depressed, make sure you seek help.

Taking control of your situation

Adapting to life with a macular disease can be difficult and it is important to remain in control. There are coping strategies that may help you:

• talking through the diagnosis with friends and family 
• staying active
• learning new skills and adapting old ones to new circumstances 
• explaining to your friends how they can help you
• maintaining existing social activities and seeking support from friends and family 
• exploring new options for friends and fun
• linking with peer support groups
• staying positive and setting realistic goals
• adjusting and actively learning new skills 
• focusing on what you can do
• accepting limitations and not being too demanding or hard on yourself
• actively seeking support from others
• adopting a ‘can do’ attitude.

Don’t make any quick decisions regarding current employment, activities, plans or your lifestyle. Seek advice from your eye health professional and low vision agencies. 

Stay engaged with social and recreational networks, especially if you’re recently diagnosed. This is when networks may be at greater risk of breaking down.