Geographic atrophy and quality of life

Global Geographic Atrophy Insights Survey Report

Apellis announced the results of their new global Geographic Atrophy Insights Survey (GAINS) on April 21.

This survey of 203 GA patients globally was conducted to improve understanding of the broader social and emotional impact of GA-related vision loss.

Key findings were:

• Nearly seven in 10 people with GA believe the impact on independence and quality of life due to their visual decline is worse than they expected.
• The majority of patients feel the disease negatively affects aspects of everyday life like the ability to read (96 per cent), drive (95 per cent), and travel (88 per cent).
• There is an important need for education, as 91 per cent of patients wish to be empowered with more information and options to take control over their disease.

The insights from this survey highlight the importance of eye health practitioners having ongoing discussions with their patients about managing the ripple effect of GA-related vision loss.

Peer support

Living with macular disease can be isolating. MDFA’s peer support might help your patients feel less alone.

We offer peer-to-peer phone calls as well as peer support groups, both face-to-face and online.

If you think your patients would benefit from peer support, please encourage them to reach out to MDFA on 1800 111 709 or education@mdfoundation.com.au.